Genetic Alliance Registry and BioBank (GARB) is a centralized, clinical data registry and sample repository that enables translational research. It is shared infrastructure that operates as a cooperative venture, extensible and responsive to the needs of the nonprofits engaged in the endeavor. Leaders in the disease research advocacy field founded Genetic Alliance Registry and BioBank in 2003. It was based on a proof of concept, single condition bank that has operated with excellent outcomes since 1995.
Our Vision: Revolutionize access to information and resources to enable translation of research into services and individualized decision-making.
Our Product: We provide a biorepository and registry that produces solutions for advocacy organizations to stimulate research for a cure.
Our Process: Using a cooperative model to allow an extensible, interoperative, and cost sharing BioBank.
About Genetic Alliance
Genetic Alliance is one of the world's leading nonprofit health advocacy organizations. We engage individuals, families, and communities to transform health. Trying to find information and interventions for disease, searching for health information, and/or finding suitable opportunities to participate in research are difficult. We create ways to make it easier to find or build solutions in health services and research.
Genetic Alliance's network includes more than 1,200 disease-specific advocacy organizations, as well as thousands of universities, private companies, government agencies, and public policy organizations. Since 1986, Genetic Alliance has defined the intersection of health and genetics. Originally founded as an alliance for support groups, our work has evolved along with the growing health advocacy movement and the rapid advancement of genetic technology. While our roots are in genetics, we recognize that meaningful solutions that improve health must be cut across disciplines, databases, diagnoses, size and geography. To that end, we apply solutions in health and disease, discovery, practice and prevention, on both a local and global level. Through our broad and diverse partnerships, we have created a dynamic network that serves as an open space for sharing valuable resources, creative tools, and innovative programs.